(TOFU)
The TOFU registry is a national registry study by the uveitis section of the German Ophthalmological Society (DOG). Adult patients with non-infectious uveitis of the posterior segments of the eye are included in it. The registry first and foremost documents and evaluates patients' disease progression. The therapy used by doctors and the end of therapy when the disease is inactive are of particular interest here as very little is known about this.
Further features of the registry include questionnaires on quality of life and limitations in everyday life that are regularly sent to participating patients and accessed by web links. This enables
participating patients to be actively involved in the registry. To this end, the registry cooperates with the patient organisations DUAG e.V. and Uveitis e.V. The Institute of Medical Biometry, Informatics
and Epidemiology (IMBIE) at the University of Bonn handles the database operation, data processing and analysis. Data is collected and stored in compliance with the applicable legal regulations and guidelines. A scientific advisory board consisting of international uveitis experts supports the registry.
Prof. Dr. Dr. med. Robert Finger
Prof. Dr. med. Carsten Heinz
TOFU is funded by the Federal Ministry of Education and Research (BMBF) as part of the funding scheme "Model Registries in Health Services Research". A total of six projects are being funded throughout Germany.
More information:
Prof. Dr. Dr. Robert Finger
Prof. Dr. Carsten Heinz
Speaker
Prof. Dr. Uwe Pleyer
Vice speaker
Board member
Prof. Dr. Frank G. Holz
Chief executive
Prof. Dr. Marc de Smet
Lausanne, European School for Advanced Studies in Ophthalmology (ESASO)
Pof. Dr. Carlos Pavesio
Moorfields London
Prof. Dr. Joke de Boer
University Medical Center (UMC), Utrecht
Prof. Dr. Justine Smtih
Flinders University Adelaide
Prof. Dr. Alastair Denniston
University of Birmingham
Prof. Dr. John Kempen
Harvard University, Medical School
